About
RarePause is an open platform for rare-disease communities — patient advocacy groups, research consortia, and caregiver networks.
We handle the infrastructure: live event streaming, member directories, scheduling, and research sharing, so community leaders can focus on the people.
Every community on RarePause is independently operated. We provide the platform; the community owns its identity, its events, and its members.
Tell us about your community and we'll get back to you. Nothing here is public.
Or email help@rarepause.com directly.